I've been in pain for 18 years, he admitted during a talk. Myositis in Samantha's case causes muscle weakening, whereas fibromyalgia in my situation causes excruciating muscle agony. You react to pain in many ways. What a regular person might not find painful, I find to be extremely agonising. Since your body is attacking you, neither disorder has a treatment. There are days when your symptoms worsen and days when they don't. Only metaphysical practises like meditation or adequate rest can be helpful.
It's difficult, but I've been fortunate to have a strong support system. It has been a challenging trip that has sapped much of my energy but also strengthened me. I'd like to speak with samantha and let her know that if I can do it, she can too. I'm really grateful she raised an issue. It takes as much willpower to hide as it does to endure suffering.